The General Assembly finds that: (1) Everyone in this State is entitled to the highest level of health care attainable and protection from inadequate health services; (2) Hereditary and congenital disorders are often costly and tragic and sometimes deadly burdens to the health and well-being of the citizens of this State; (3) Detection through screening for hereditary and […]
There is a State Advisory Council on Hereditary and Congenital Disorders.
(a) (1) The Advisory Council consists of 11 voting members and 4 nonvoting members. (2) Of the 11 voting members: (i) 1 shall be a member of the Senate appointed by the President of the Senate; (ii) 1 shall be a member of the House of Delegates appointed by the Speaker of the House; (iii) 4 shall be professional individuals in […]
From among its voting members, the Advisory Council shall elect every 2 years a chairman and a vice chairman.
(a) A majority of the full authorized voting membership of the Advisory Council is a quorum to do business. (b) The Advisory Council shall meet at least twice a year, at the times and places that it determines. (c) A member of the Advisory Council: (1) May not receive compensation; but (2) Is entitled to reimbursement for expenses under the […]
The Advisory Council may establish subcommittees.
To preserve and protect the health and welfare of the citizens of this State, the Advisory Council may: (1) Gather and give out information to further the public’s understanding of hereditary and congenital disorders; (2) Reevaluate continually the need for and the effectiveness of State hereditary and congenital disorders programs; (3) Make any necessary recommendation to end any […]
(a) Subject to the requirements of this section, the Department may adopt rules, regulations, and standards for the detection and management of hereditary and congenital disorders. (b) (1) Before the Department adopts a rule, regulation, or standard, the Department shall consult: (i) The public, especially communities and groups who particularly are affected by hereditary and congenital disorders programs; (ii) Where […]
The Secretary: (1) Is responsible for the operation of hereditary and congenital disorders programs within the rules, regulations, and standards that the Department adopts; (2) Shall disburse and collect any funds available to the Department; (3) Shall enforce the rules, regulations, and standards that the Department adopts; and (4) Shall keep the Advisory Council informed of: (i) The progress of […]
(a) The Department shall establish a coordinated statewide system for screening all newborn infants in the State for certain hereditary and congenital disorders associated with severe problems of health or development, except when the parent or guardian of the newborn infant objects. (b) Except as provided in § 13–112 of this subtitle, the Department’s public health laboratory […]
(a) The Secretary may contract or delegate the screening required under § 13–111 of this subtitle to another entity with the approval of the State Advisory Council on Hereditary and Congenital Disorders. (b) Subject to subsection (c) of this section, a laboratory other than the Department’s public health laboratory may perform postscreening confirmatory or diagnostic tests on […]
(a) In this section, “Fund” means the Newborn Screening Program Fund. (b) There is a Newborn Screening Program Fund. (c) The purpose of the Fund is to provide funding for the screening of newborn infants in the State for certain hereditary and congenital disorders. (d) The Secretary shall administer the Fund. (e) (1) The Fund is a special, nonlapsing fund that […]
