NRS 439.5075 – Creation; membership; vacancies; compensation; Chair; meetings.

1. The Rare Disease Advisory Council is hereby created within the Department of Health and Human Services. The Council consists of: (a) The Chair of the State of Nevada Advisory Council on Palliative Care and Quality of Life created by NRS 232.4855 or his or her designee; and (b) The following members appointed by the […]

NRS 439.5077 – Duties.

1. The Rare Disease Advisory Council created by NRS 439.5075 shall: (a) Perform a statistical and qualitative examination of the incidence, causes and economic burden of rare diseases in this State; (b) Receive and consider reports and testimony concerning rare diseases from persons, the Division, community-based organizations, providers of health care and other local and […]