The intent of this subtitle is: (1) To educate parents and physicians regarding homozygous sickle cell anemia; (2) To monitor each affected infant’s health in that regard; and (3) To provide resources for detecting sickle cell disease and supporting individuals with sickle cell disease.
(a) After securing the written approval of one of the parents or guardian of an infant at risk, the person in charge of the institution in which the infant is born, or the person who is required to prepare and register the certificate of birth for an infant born outside an institution, shall have administered a […]
(a) On determination of the presence of sickle cell anemia, the Department shall: (1) Notify in writing: (i) The physician of record or the institution at which the child is born; and (ii) The parents or guardian of the infant; (2) Provide the parents or guardian of the infant and the physician of record with educational materials; and (3) Offer referral […]
(a) The Department and all persons shall maintain and treat all information derived from testing as confidential medical records as provided in § 13-109 of this article. (b) Notwithstanding any other provision to the contrary, the Department may disclose confidential information, obtained pursuant to this title, to the Department of the Environment, as determined to be appropriate […]
(a) The Department shall designate any type of blood test for sickle cell anemia to be administered under this subtitle. (b) The blood shall be tested only by a licensed laboratory that periodically undergoes standard proficiency testing for quality assurance.
(a) In this section, “Steering Committee” means the Statewide Steering Committee on Services for Adults with Sickle Cell Disease. (b) There is a Statewide Steering Committee on Services for Adults with Sickle Cell Disease. (c) The Steering Committee shall include representatives from: (1) Local and national groups that advocate for individuals with sickle cell disease; (2) Interest and support groups […]
(a) The Department may, in consultation with the Statewide Steering Committee on Services for Adults with Sickle Cell Disease, provide services relating to sickle cell disease, including: (1) Educational programs on sickle cell disease for individuals affected by the disease, including: (i) Individuals with sickle cell disease; (ii) Families of individuals with sickle cell disease; (iii) Caregivers of individuals with […]
